RECENT CAUSES
A small donation from you can make a big difference for many.
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Help this farmer save his daughter’s life from Pompe disease- a rare condition
0%Raised: Rs. 13,162.00 Rs. 6,000,000.00 -
Master Bhuvik needs GH Injection to grow like a normal Boy, Please Donate.
2%Raised: Rs. 2,550.00 Rs. 130,000.00 -
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Sunlight’s Enemy: Maninder Singh’s Battle Against Xeroderma Pigmentosum
20%Raised: Rs. 39,800.00 Rs. 200,000.00 -
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OUR GALLERY
Our gallery showcases inspiring stories and achievements of patients, highlighting their journeys and resilience. Through captivating visuals and narratives, we aim to spread awareness and hope.
ABOUT US
Save My Life is a non-profit crowdfunding platform that, in association with ORDI (Organization for Rare Diseases India), strives to improve the lives of individuals suffering from rare diseases. ORDI is a national umbrella organization representing the voices of patients with rare diseases in India, established as a Section 25 non-profit company.
Our platform supports ORDI's mission to advocate for rare disease patients in India. Through collaboration, we promote rare diseases as a human rights priority, influence public policy, and connect with advocacy organizations globally. We also accelerate diagnosis and treatment through public-private partnerships and support newborn screening, clinical trials, research, and orphan drug development.
Building a Strong Rare Disease Community: How You Can Help
Understanding Rare Diseases and Their Impact Rare diseases, often defined as conditions affecting fewer than 200,000 individuals in the United States, encompass a wide variety of ailments that can profoundly impact the lives of patients and their families. There are over 7,000 recognized rare diseases, collectively affecting approximately 25-30 million Americans. The rarity of these…
The Urgent Need to Prioritize Rare Diseases in Public Health | Healthcare Reform
Have you ever wondered why some health conditions get more attention than others? While common diseases often take center stage in public health discussions, there’s a compelling case for why rare diseases deserve equal attention. Let me share why this matters more than you might think. The Hidden Crisis in Healthcare Picture this: A young…